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Clinical and Metabolic Genetics
Clinical and Metabolic Genetics

Common questions

What can I do to help my baby now that I have this information?

This is surprising news to be getting and understandably you may be concerned. Know that you are doing everything you need to for your baby by continuing with your typical baby care routine. Of course, parents often have a lot of questions about the health of their new baby. These may include questions regarding spitting up, development, colic and breastfeeding. A good resource to learn more about newborn care is AboutKidsHealth. Of course, this information is not intended to replace medical advice from your baby's health care provider.

I have been feeling worried since learning that my baby screened positive, is this normal?

Learning that your baby has had a positive newborn screen is unexpected news for most parents. It is normal to react to this kind of information and uncertainty about your new baby’s health by feeling upset or worried. The Newborn Screening team will arrange follow-up testing which can tell us whether or not your baby has the disease.

Here are some strategies that other families have found helpful during this process:

  • allow people to help support you and your family. Don’t be afraid to ask for help when you need it.
  • Discuss your feelings openly with supportive people in your life
  • Seek accurate information/knowledge related to newborn screening and follow-up testing if you find this helpful
    take time to care for yourself. 
  • This includes making sure you are taking care of your physical and emotional needs as much as possible.  
  • Taking care of yourself will allow you to have the energy to meet your baby’s needs.
  • Talk to your child’s health care provider or a newborn screening retrieval team member if you have further questions

If after trying some of these strategies you are still having difficulties, you may want to seek further support. You may consider contacting your doctor or a newborn screening retrieval team member who can put you in touch with our social worker.