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Areas of Care

Down Syndrome Clinic

About us

Children with Down syndrome require extra support developmentally and medically. The Down Syndrome Clinic is a central hub designed to facilitate comprehensive and streamlined access to health care, funding, and other programs across the GTA that will help children get the best start at life.

Contact us

416-813-7654 x 204890

Clinic/registration location

The Down Syndrome Clinic is in Clinic 7 on the main floor of the hospital beside the Shopper's Drug Mart. Please register at the reception area at Clinic 7.

When you register, a SickKids identification (ID) band will be placed on your child. The band must be worn on your child's arm or ankle at all times. Check your child's ID band to make sure the information is correct. If your child is not wearing a band or has the wrong one, it can lead to errors that can result in the wrong care for your child. Staff must always check the band before providing care to your child. Your child must keep the band on at all times while at SickKids.

If you or your child are sick before your appointment

Call the clinic if you or your child have had a cold, cough, diarrhea, fever or rash within two days of your appointment, or have been sick with or exposed to chicken pox in the last three weeks. Your appointment may need to be rescheduled. 

Tell the clerk, nurse or doctor if your child has been in a hospital outside of Canada within the last 12 months. 

If you cannot come to your child’s appointment, it is important that you call the clinic as soon as possible to cancel and reschedule.

Be on time

Please check in 15 minutes prior to your appointment time, to allow for blood work prior to your appointment if needed.

If you are late, you may have to wait for other patients to be seen first. Allow lots of time to get to the hospital. It can take some time to get used to finding your way around and it is important to be on time for your child’s appointment. Staff will try to see your child as close to your appointment time as possible. Please understand that some patients being seen ahead of you may need more time than expected, and this can cause delay for others.

Bring the following

  • You must show valid health-care coverage at every visit. If you do not, you will be required to pay a fee for the visit, unless coverage or insurance can be verified.

Proof of health-care coverage must be valid at the time of visit (not expired).

    • If you live in Ontario, show your child’s valid Ontario Health Insurance Plan (OHIP) card.
    • If you live in another province, show your child’s provincial health-care card.
    • If you are a refugee claimant, show your child’s Interim Federal Health Program (IFHP) certificate.
    • If you have private health insurance, show the appropriate information or documentation.
    • If you are receiving support from a Community Health Centre (CHC), show a letter from the CHC.
  • Your appointment card or letter
  • Toys, books, nut-free snacks, diapers and formula to keep your child comfortable and occupied in case there is a wait
  • Any medical information, such as referral letters, test results, information about current therapies, X-rays, MRIs, ultrasounds or CT scans
  • All medications your child is currently taking (in original packaging), including alternative and complementary treatments
  • Any completed forms that were provided to you prior to your appointment: intake forms, ABAS forms, Consent for Disclosure of Personal Health Information.
  • Therapy reports (e.g. OT, PT, Speech)

Important pre-appointment instructions

Please complete and return the intake form prior to your first visit. You may email the forms to ds.clinic@sickkids.ca, fax the forms to 416-813-7055, or call 416-813-7654 ext. 204890 to inquire about dropping off the forms to the clinic.

When required, ABAS questionnaires need to be completed and returned to the clinic one month prior to your visit.

Try not to bring other children to the appointment

If other children must come, please consider taking them to the Play Park during your visit. The Play Park is a free, fun and safe place for brothers and sisters of patients to play. It is open Monday to Friday from 8:30 a.m. to 4 p.m. and weekends from 11:30 a.m. to 3:15 p.m. It is located on the Main Floor of the Atrium, next to the parking elevators. All children over 2 ½ years of age are welcome. Trained staff and volunteers will watch your children carefully. You do not need to book in advance to use the Play Park. The Play Park number is 416-813-8884.

Latex allergy

Call the clinic before coming to the hospital if your child or anyone coming with them has a known or suspected allergy to latex.


All visitor entrances on the Main Floor are wheelchair accessible. SickKids has several wheelchair-accessible washrooms on the Main Floor. Both male and female washrooms in the Atrium have large change tables where children and teens can have diapers changed. There is another private wheelchair-accessible washroom with a large change table on the Service Floor of the Black Wing in Room S213, across the hall from Rehabilitation Services. Wheelchairs are available near the Atrium and University Avenue entrances.

Assistance dogs for children or parents with disabilities are allowed at SickKids. Please make sure they are clean and have up-to-date immunizations.

Interpreter Services

If you need an interpreter, please call the clinic before your appointment so we can arrange for an interpreter. There is no charge for an interpreter. Please give us at least 24 to 48 hours' notice to make it easier for us to find an interpreter for you.

What to expect during your visit

At your first appointment, you will meet the Down syndrome team (a paediatrician, a developmental paediatrician, a nurse, and a social worker). Also present at the appointment will be a representative from Surrey Place Centre’s Infancy and Early Childhood Program. Your appointments will be between 60 and 90 minutes. During the first appointment, we will take a health history of your child, provide information on Down syndrome and explain the specific health and developmental needs of children with Down syndrome.

We will see you and your child every 6 to 12 months, and will ask you to complete developmental assessments on your child as they grow. We will see your child in the clinic until they start school (typically around 4 years old).

We expect our patients to maintain close contact with their regular family doctor/paediatrician, as the Down Syndrome Clinic does not provide primary care.

Information and referrals

You can find links to our resource directory in the PDFs below. These include early intervention services, family support networks, child care and schools, programs, and medical information on Down syndrome.  

If you are a health-care provider and wish to make a referral to our clinic, please do so through ARMs. Please note that there is information on financial assistance for families with special needs that can be started by any physician on behalf of the family. There is also recommendations for referring to early intervention services.

For family members of children with Down syndrome, you can make a referral to early intervention, speech and language, respite, and audiology (before 12 months of age) services in our directory. These do NOT require a doctors referral.