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Centre for Global Child Health

Mapping Retinoblastoma Health Services

Principal investigator: Dr. Helen Dimaras, Scientist at the Centre for Global Child Health and Child Health Evaluative Sciences at The Hospital for Sick Children (SickKids), Assistant Professor, the Faculty of Medicine and Dalla Lana School of Public Health at the University of Toronto.

Retinoblastoma (childhood eye cancer) is curable, but patient outcomes remain poor in many low- and middle-income countries. Optimal resources and expertise for retinoblastoma management have been outlined in published clinical guidelines, serving to direct health policy and practice at national, regional and institutional levels. However, the capacity of retinoblastoma treatment centres to implement such guidelines varies worldwide.

This situational analysis will document resources and expertise available at retinoblastoma treatment centres, and to map their global distribution with retinoblastoma incidence.

One Retinoblastoma World is an online map that documents resources and expertise available at retinoblastoma treatment centres, and maps their global distribution with retinoblastoma incidence. We have yet to examine how the treatment centers in One Retinoblastoma World are connected to each other, and to other actors not depicted on the map.

Learn more at http://lab.research.sickkids.ca/dimaras/

Project collaborators include The University Health Network.

 

Related studies

Social Network Analysis of the One Retinoblastoma World Network