Other Transition Programs and Organizations
We’ve outlined some of other key transition programs from around Canada, USA and the world that health-care professionals (as well as youth and their families) will find useful in learning more about transitions and to access other available tools. A brief description and some of the key transition-related resources are described below.
Two other organizations are described below that are supporting the transitions field’s Knowledge Exchange and Policy and Research in Canada.
If you have other ideas of websites we should link to, please contact us.
Other Transition Programs:
OnTrac Program, British Columbia, Canada
Description: ON TRAC is a program in British Columbia, Canada. The ON TRAC program describes itself as, “a province-wide, multifaceted Transition Initiative to support comprehensive, continuous, accessible, sustainable and developmentally-appropriate care to youth and young adults (ages 12-24 years) with chronic health conditions and/or disabilities (CHC/Ds) as they plan, prepare and transfer from pediatric to adult health-care services.”
Key Transition Related Resources: Website includes tools, description of current projects, research and key contacts for the program.
Youth Health Program Site, British Columbia Children’s Hospital
Description: The Youth Health Program (established in 2000) is committed to improving the health of young people in British Columbia through clinical services, health promotion, education and training, advocacy, and research. The program counsels young people about adolescent development, health and well-being, sexuality, and the transition to adulthood. The program also provides consultation as well as educational and training opportunities for professionals.
Key Resources Related to Transition: Contains resources for professionals on standards of care for adolescents, tips on caring for youth and the “HEADSS” Assessment Guide.
Description: Got Transitions is an American website that contains comprehensive information about transition for youth, families and service providers. Got Transitions attempts to “facilitate the implementation and dissemination of health-care transition best practices in pediatric and adult medical homes and specialty settings.”
Key Transition Related Resources: The “for providers” section contains general resources, information related to best practices, and resources specifically about the ‘six core elements of transition’.
Adolescent Health Transition Project
Center on Human Development and Disability (CHDD) at the University of Washington
Description: This website was originally developed for the Adolescent Health Transition Project, funded by the Washington State Department of Health, Children with Special Health Care Needs Program. Although the website is not currently being updated due to a lack of funding, the content on the website related to the transition process, transition resources and transition and school are excellent.
Key Transition Related Resources: An excellent source for patient handouts, booklets, forms and checklists related to preparing for transitions within health care and school.
Jacksonville Health and Transition Services (JaxHATS), University of Florida Health
Description: The JaxHATS clinic serves teens and young adults, ages 14 - 25, with chronic medical or developmental problems and attempts to make transition easier for these patients. The website also has resources for service providers in addition to resources aimed at patients and their families.
Key Transition Related Resources: An excellent resource for videos to show patients with regards to skill development and transition issues. This website also features downloadable copies of Transition Readiness Assessment Questionnaire (TRAQ), a validated, patient-centered questionnaire that providers and families can use to assess youths’ ability to make appointments, to understand their medications and to develop other skills needed for transition to adult care. There are other assessments and a list of key transition “trigger questions” that providers should ask patients preparing for transition. The site also offers online training on transition issues for health-care providers.
Royal Children’s Hospital, Melbourne Australia
Description: The Transition Project commenced in 2004 to establish pathways for young adult patients moving on from The Royal Children's Hospital to adult health-care providers. This program is also associated with “ChIPS”, a Chronic Illness Peer Support program that includes discussion groups, social activities, camp and leadership training.
Key Transition Related Resources: This website is a good source for factsheets, patient brochures and handouts on a wide variety of topics related to transition.
CAPHC – Canadian Association of Paediatric Health Centres
Description: The Canadian Association of Paediatric Health Centres (CAPHC) is a non-profit organization that brings together many health-care organizations providing health services for children, youth and their families nationwide. All Canadian children’s hospitals and their respective Foundations are members of CAPHC, thereby providing linkages to clinical care, education and research. CAPHC's mandate is to affect system-wide change in the delivery of health services to children and youth across Canada. CAPHC focuses on initiatives that have national and broad relevance and which are practical and actionable at the point of service delivery. As of January 2013, Good 2 Go serves as a co-lead with a Community of Practice group supported by CAPHC that is aiming to develop clinical practice guidelines for transitions.
Key Resources Related to Transition: The CAPHC website includes the “Knowledge Exchange Network” or KEN, where professionals share information with one another across Canada. CAPHC also regularly hosts webinars. These webinars remain on the CAPHC website and there are several excellent webinars related to transition issues online.
Policy and Research:
Canadian Foundation for Health care Improvement
Description: A not-for-profit organization funded by the government of Canada focusing on improving health-care delivery. Their website states: “We collaborate with governments, policy-makers, and health system leaders to convert evidence and innovative practices into actionable policies, programs, tools and leadership development.” Good 2 Go has worked with CFHI on a project examining the transition needs of youth and young adults with complex care needs. A copy of the report is available.
Key Resources Related to Transition: While the majority of content does not address transition specifically, the CFHI website contains tools for health-care providers and those in health-care administration to help organizations become better equipped to use evidence based practice. For example, the resources section contains a ‘self assessment tool’ to determine if organizations are well equipped to generate and use research evidence in their practices. CHFI also has a “resource hub” on how to best assess, design and implement ‘patient engagement’ initiatives.