The Shared Management Model
The Good 2 Go philosophy is based on the Shared Management Model, developed in 2000 by Kieckhefer and Trahms.1 The model describes the development of an early therapeutic alliance between children/youth, families and health-care providers as being essential to allow young people with chronic conditions to develop into independent, healthy, functioning adults. There is a strong emphasis on a gradual shift in responsibility where the leadership for care shifts from the health professional to the parent and then ultimately to the youth.
As the child ages, they actively participate in their health care in an age-appropriate manner. For example, a 3-year-old child who requires insulin can walk to the refrigerator to get their insulin bottle and then give it to his or her parent who will administer it. In contrast, a 12-year-old may be responsible for self-administration of insulin, while a parent oversees the process and orders refills as needed.
The roles of children, parents and the health-care team change over time and may move back and forth as the child's medical condition changes. The health-care team and parent eventually move into consultant roles and the adolescent, with new skills in self-management, eventually becomes the supervisor of their own health.
1 Kieckhefer GM., & Trahms CM. Supporting development of children with chronic conditions: From compliance toward shared management. Pediatric Nursing 2000;26(4):354-363.
*We recognize this model will not apply to youth with complex care needs and/or severe developmental or neurocognitive concerns. Please check out the section Just for Caregivers and Parents for ways to support youth who are unlikely to lead their own health care in the paediatric or adult health care systems.