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Paediatric Medicine
Paediatric Medicine

Complex Care Grants & Awards

Please visit the Norman Saunders Complex Care Grant page for more information about grant opportunities. 

 

2017

  • 2017/01 - 2021/04:  Co-Principal Investigator. Coached, Coordinated, Enhanced Neonatal Transition (CCENT) (Discharge from NICU – 18 months later). CHILD-BRIGHT (Child Health Initiatives Limiting Disability-Brain Research Improving Growth and Health Trajectories). Principal Investigators: Cohen E, Major N, Orkin J, Church P. $1,945,000 CAD. Funding: Non-Competitive.
  • 2017/04/01 - 2020/03/31:  Co-Investigator. Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives. Canadian Institutes of Health Research, Foundation Scheme Programmatic Grants. Principal Investigators: Potter BK, Chakraborty P. Co-Investigators: Brehaut J, Cohen E, Dyack S, Gillis J, Greenberg C, Grimshaw J, Hayeems R, Jolly A, Jordan I, Khangura S, Mackenzie J, Major N, Mitchell JJ, Nicholls S, Pallone N, Schulze A, Smith M, Sparkes R, Speechley KN, Stockler S, Teitelbaum M, Trakadis Y, Van Karnebeek C, Walia J, Wilson BJ, Wilson K. $738,224 CAD. Funding: Competitive.
  • 2017/02 - 2019/02:  Co-Investigator. Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairments (PIUO). Canadian Institutes of Health Research, SPOR Child Bright. Principal Investigator: Siden H. Co-Principal Investigator: Oberlander T. Co-Investigators: Carleton B, Cohen E, Dewan T, Gnanakumar V, Holsti L, Orkin J (site PI), Rapoport A, Robertson M, Schwantes S, Vadeboncoeur C, Singer J. $860,000 CAD.
  • 2017/02 - 2019/02:  Co-Investigator. CHILD BRIGHT: Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairments (PIUO). Principal Investigator: Siden H. Co-Principal Investigator: Oberlander T. Co-Investigators: Carleton B, Cohen E, Dewan T, Gnanakumar V, Holsti L, Orkin J, Rapoport A, Robertson M, Schwantes S, Vadeboncoeur C, Singer J. $860,000 CAD.
  • 2017/02 - 2018/02:  Co-Investigator. Competence in Complex Care: A Multicenter Randomized Trial of Curricular Modules in the Care of Children with Medical Complexity for Paediatric Residents. Paediatric Consultants Education Innovation and Development Grant. Principal Investigators: Orkin J, Huth K, Long-Gagne S. Co-Investigators: Cohen E, Sbrocci A, Taveres W. $9,714.69 CAD. Funding: Competitive.
  • 2017/02/08 - 2018/02/08:  Principal Investigator. Competence in Complex Care: A Multicenter Randomized Trial of Curricular Modules in the Care of Children with Medical Complexity for Paediatric Residents. Paediatric Consultants Education Innovation and Development Grant. Principal Investigators: Orkin J, Huth K, Long-Gagne S. Co-Investigators: Cohen E, Sbrocci A, Taveres W. $9,714.69 CAD. Funding: Competitive.
  • 2017/04:  Principal Investigator. The development and implementation of a caregiver education program for children requiring medical technology in the home. Baxter Corporation Endowment Fund for Home Care. Principal Investigator: Orkin J. $52,000 CAD.

2016

  • 2016/07/01 - 2021/06/30:  Co-Investigator. When Expertise Collides: Using Family Narrative and Experienced-Based CoDesign to Enhance Care for Children with Medical Complexity in the Pediatric Intensive Care Unit. Principal Investigators: Rennick JE, Law S, Buchanan F. Co-Investigators: Dryden-Palmer K, Patel H, Carnevale F, Razack S, Cohen E, Garros D, Zhang X. Collaborators: Hutchinson J, Enano A, Scott C. Canadian Institutes of Health Research (CIHR: 364440). $1,565,000 CAD. Funding: Competitive
  • 2016/01/01 - 2019/04/01:  Co-Principal Investigator. A Demonstration of Pediatric Project ECHO® in Ontario for Pain, Bariatric Care, Complex Care, and Palliative Care. Ministry of Health and Long-term Care (MOHLTC). Principal Investigators: Stinson J, Rapoport A, Cohen E, Hamilton J, Campbell F, Lalloo C and Chairs, Pediatric Project ECHO Ontario. $2,996,248. Funding Competitive.
  • 2016/04 - 2018/04:  Co-Principal Investigator. Complex Care for Kids Ontario (CCKO): A Province-Wide Integrated Care Intervention for Children with Medical Complexity (CMC) using a Patient-Engaged Evaluation Framework. Ontario SPOR SUPPORT Unit. Principal Investigators: Fayed N, Cohen E. Co-Investigators: French S, Guttmann A, Klassen A, Kitchen L, Kolehmeinen N, Moretti M, Offringa M, Willian A, Williams L, Meloche J, Wodchis W, Major N, Orkin J, Lim A. $300,000 CAD. Funding: Competitive.
  • 2016/12 - 2018/12:  Collaborator. A Demonstration of Pediatric Project ECHO® in Ontario for Pain, Bariatric Care, Complex Care, and Palliative Care. Ministry of Health and Long-term Care (MOHLTC). Principal Investigators: Stinson J, Rapoport A, Cohen E, Hamilton J, Campbell F, Lalloo C and Chairs, Pediatric Project ECHO Ontario. $2,996,248. Funding Competitive.
  • 2016-2018:  Co-Investigator. Complex Care for Kids ON (CCKO): A Province-Wide Integrated Care Intervention for Children with Medical Complexity (CMC) using a Patient-Engaged Evaluation Framework. ON SPOR SUPPORT Unit. Principal Investigators: Fayed N, Cohen E. Co-Investigators: French S, Guttmann A, Klassen A, Kitchen L, Kolehmeinen N, Moretti M, Offringa M, Willian A, Williams L, Meloche J, Wodchis W, Major N, Orkin J, Lim A. $300,000 CAD. Funding: Competitive.
  • 2016/11 - 2017/11:  Co-Investigator. Competence in Complex Care: A Multicenter Randomized Trial of Curricular Modules in the Care of Children with Medical Complexity for Paediatric Residents. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Huth K, Long-Gagne S. Co-Investigators: Cohen E, Sbrocci A, Taveres W. $12,714.69 CAD. Funding: Competitive.
  • 2016/11 - 2017/11:  Co-Investigator. Exploring families and health care providers (HCPs) experiences using a cloudbased care plan for children with medical complexity (CMC). Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Adams S, Desai A. Co-Investigator: Cohen E. $23,649 CAD. Funding: Competitive.
  • 2016/11/30 - 2017-11/30:  Principal Investigator. The Experiences of Bereaved Family Caregivers with Advance Care Planning for Children with Medical Complexity. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Lord S, Amin R. Co-Investigators: Cohen E, Hellman J, Rapoport A, Netten K. $8,785 CAD. Funding: Competitive.
  • 2016/11/30 - 2017/11/30:  Principal Investigator. Competence in Complex Care: A Multicenter Randomized Trial of Curricular Modules in the Care of Children with Medical Complexity for Paediatric Residents. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Huth K, Long-Gagne S. Co-Investigators: Cohen E, Sbrocci A, Taveres W. $12,714.69 CAD. Funding: Competitive.
  • 2016/11-2017/11:  Co-Investigator. The Experiences of Bereaved Family Caregivers with Advance Care Planning for Children with Medical Complexity. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Lord S, Amin R. Co-Investigators: Cohen E, Hellman J, Rapoport A, Netten K. $8,785 CAD. Funding: Competitive.

2015

  • 2015/07 - 2021/06:  Principal Investigator. Health Outcomes of Children with Medical Complexity and their Caregivers. Canadian Institutes for Health Research, Foundation Scheme Programmatic Grants. Principal Investigator: Cohen E. Co-Investigators: Berry J, Brehaut J, Guttmann A, Lim A, Mahant S, Major-Cook N, McNeil D, Morinis J, Nicholas D, Offringa M, Peebles E, Ray J, Rosenbaum P, Stremler R, Stromquist L, To T, Vigod S, Williams L, Wodchis W. $997,729 CAD. Funding: Competitive.
  • 2015/12 - 2016/12:  Co-Investigator. The experiences and expectations of family caregivers and health care providers of advance care planning in children with medical complexity (CMC). Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Amin R., Orkin J. CoInvestigators:  Cohen E, Rapoport A, Netten K, Adams S: $23,304 CAD. Funding: Competitive.
  • 2015/12 - 2016/12:  Co-Investigator. The role of whole genome sequencing as a diagnostic tool for children with medical complexity. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Hayeems R, Meyn S. Co-Investigators: Bowdin S, Orkin J, Cohen E, Stavropoulos, Marshall C, Basran R, Monfared N, Ungar W, Cohn R: $24,695 CAD. Funding: Competitive
  • 2015/05 - 2016/05:  Co-Investigator. The experience of caregivers of children with medical complexity receiving blenderized tube feeding: a qualitative study. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Soscia J. Co-Investigators: Adams S, Cohen E, Friedman J, Gallagher K, Marcon P, Nicholas D. $17,048 CAD. Funding: Competitive
  • 2015/12/07 - 2016/12/07:  Co-Principal Investigator. The experiences and expectations of family caregivers and health care providers of advance care planning in children with medical complexity (CMC). Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Amin R., Orkin J. Co-Investigators:  Cohen E, Rapoport A, Netten K, Adams S: $23,304 CAD
  • 2015/12/07 - 2016/12/07:  Co-Investigator. The role of whole genome sequencing as a diagnostic tool for children with medical complexity. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Hayeems R, Meyn S. Co-Investigators: Bowdin S, Orkin J, Cohen E, Stavropoulos, Marshall C, Basran R, Monfared N, Ungar W, Cohn R: $24,695 CAD
  • 2015/05/06 - 2016/05/06:  Principal Investigator. The experience of caregivers of children with medical complexity receiving blenderized tube feeding: a qualitative study. Norman Saunders Complex Care Initiative Grant Competition. Principal Investigators: Orkin J, Soscia J. Co-Investigators: Adams S, Cohen E, Friedman J, Gallagher K, Marcon P, Nicholas D. $17,048 CAD.
  • 2015/07 - 2021/06:  Co-Investigator. Health Outcomes of Children with Medical Complexity and their Caregivers. Canadian Institutes for Health Research, Foundation Scheme Programmatic Grants. Principal Investigator: Cohen E. Co-Investigators: Berry J, Brehaut J, Guttmann A, Lim A, Mahant S, Major-Cook N, McNeil D, Morinis J, Nicholas D, Offringa M, Peebles E, Ray J, Rosenbaum P, Stremler R, Stromquist L, To T, Vigod S, Williams L, Wodchis W. $997,729 CAD. Funding: Competitive
  • 2015/10-2020/10:  Co-Principal Investigator. CHILD-BRIGHT: Child Health Initiatives Limiting Disability-Brain Research Improving Growth and Health Trajectories. Canadian Institutes of Health Research. Principal Investigators: Majnemer A, Cohen E, Goldowitz D, Gorter JW, Kirton CA, Lach LM, Marell A, Mcgrath PJ, Miller SP. Co-Investigators: Florence D, Gavin F, Kitch T, Major-Cook N, O’Donnell M, Thomson D. $12,450,000 CAD. Funding: Competitive
  • 2015 - 2016:  Building Excellence in Enteral Education: A Video Decision Aid for Families Considering G tube Insertion. SickKids Innovation Fund. Project Lead: Oppedisano, S. Team Members: Mistry N, Norgrove H, Schurr S, Ball S, Mullings T, Mahant S. Role: Senior Team Member/Mentor

2014

  • 2014 - 2021:  Health Outcomes of Children with Medical Complexity and their Caregivers. Canadian Institutes of Health Research. Principal Investigator: Cohen E. Co-Investigators: Berry J, Brehaut J, Guttmann A, Lim A, Mahant S, Major-Cook N, McNeil D, Morinis J, Nicholas D, Offringa M, Peebles E, Ray J, Rosenbaum P, Streimer R, Stromquist L, To T, Vigod S, Williams L, Wodchis W. $997,729.
  • 2014/12 - 2016/12:  Co-Investigator. The EXPLORING SLEEP Study: A Study EXPLORING the experiences and perceptions of end-users in the development of a SLEEP promoting intervention among family caregivers of children who depend on medical technology. Norman Saunders Complex Care Research Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigator: Keilty K. Collaborators: Barbita J, Cohen E, Spalding K, Stremler R. $10,949 CAD. Funding: Competitive.
  • 2014/12 - 2015/12:  Co-Investigator. Core set of outcomes for children with severe neuro-disability and gastrostomy tube dependency: A tool of standardized outcomes for clinical research and practice.  Norman Saunders Complex Care Research Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigator: Offringa M. Collaborators: Kapadia M, Cohen E, Guttmann A, Maguire J, Mahant S, Nelson K. $26,500 CAD. Funding: Competitive.
  • 2014/01 - 2015/01:  Co-Investigator. An Exploration of Care Mapping Among Families of Children with Medical Complexity.  Norman Saunders Complex Care Initiative Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigators: Adams S, Kanani R (Co-PIs), Co-Investigators: Cohen E, Mahant S, Nicholas D. $24,515 CAD. Funding: Competitive.
  • 2014/07 - 2015/07: Principal Investigator. An exploration of care mapping among families of children with medical complexity (CMC). Associated Medical Services (AMS), AMS Phoenix Project Call to Caring Grant. Principal Investigators: Adams S, Cohen E. Collaborators: Kanani R, Mahant S, Nicholas D, Boydell K. $20,000 CAD. Funding: Competitive.
  • 2014 - 2015:  An exploration of care mapping among families of children with medical complexity (CMC). Associated Medical Services (AMS) Phoenix Project Call to Caring Grant. Principal Investigator: Adams S. Co-Investigators: Kanani R, Cohen E, Mahant S, Nicholas D. $20,000
  • 2014 - 2015:  Core set of outcomes for children and youth with neuro-disability and feeding tube dependency. Norman Saunders Complex Care Grant Competition. Principal Investigator: Kapadia M. Co-Investigators: Cohen E, Maguire J, Guttmann A, Mahant S, Offringa M. $26,500
  • 2014 - 2015:  The experience of caregivers of children with medical complexity receiving blenderized tube feeding: a qualitative study.Soscia J, Orkin J, Adams S, Cohen E, Gallaghar K, Marcon P, Friedman JN, Nicholas G: Norman Saunders Complex Care Initiative Grant Competition, The Hospital for Sick Children ($11,730) (C)
  • 2014:  The Experience of Caregivers of Children with Medical Complexity Receiving Blenderized Tube Feeding:  A Qualitative Study. PI: Soscia, J & Orkin, J, Co-Investigators:  Adams S, Cohen, E, Friedman, F, Gallagher K, Marcon, P & Nicholas D. ($17,048)

2013

  • 2013/05 - 2016/05:  Co-Investigator. Youth with Chronic Conditions Transitioning to Adult Care. Health Systems Performance Research Network, Ministry of Health and Long-Term Care. Principal Investigator: Wodchis W. Collaborators: Guttmann A, Cohen E, Moore C. $4,645,190 CAD. Funding: Competitive.
  • 2013/04 - 2015/03: Co-Investigator. Pilot randomized control trial of an online communication tool for collaborative care in complex patients.  AHSC AFP MSH-UHN. Innovation Fund. Principal Investigator: Husain A. Co-investigators: Stinson J, Rapoport A, Cohen E, Jamieson T, Cafazzo J, Grunfield E, Bezjak A, Goldman R, Sawka C, Guerriere D. $199,974 CAD. Funding: Competitive.
  • 2013/10 - 2014/10:  Co-Principal Investigator. Exploring parent-health care provider decision making practices for children with complex health care needs receiving home care services: a pilot study using multiple case-study design. Norman Saunders Complex Care Initiative Grant Competition. Norman Saunders Complex Care Initiative. Principal Investigators: Cohen E, LeGrow K (Co-PIs), Co-Investigators: Espin S, Gibson B, Kitto S, Nicholas D. $26,152 CAD. Funding: Competitive.
  • 2013 - 2014:  An exploration of care mapping among families of children with medical complexity (CMC). Norman Saunders Complex Care Grant Competition. Adams S, Kanani R, Cohen E, Mahant S, Nicholas D. $20,000

2012

  • 2012/11 - 2018/06:  Co-Investigator. Surgical interventions and outcomes of children with trisomy 13 and 18 in Ontario.  Norman Saunders Complex Care Research Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigator: Nelson K. Co-investigators: Mahant S, Cohen E, Guttmann A. $20,000 CAD. Funding: Competitive.
  • 2012/11 - 2013/11:  Principal Investigator. CARE to SLEEP Study.  Norman Saunders Complex Care Research Grant Competition, Norman Saunders Complex Care Initiative..Principal Investigator: Cohen E, Co-investigator: Keilty K. $3,681 CAD. Funding: Competitive.
  • 2012/07 - 2013/07:  Co-investigator. Sleep Disturbance in Family Caregivers of Technology Dependent Children.  Ontario Respiratory Care Society (ORCS) of the Ontario Lung Association ($15,000 CAD); Canadian Respiratory Health Professionals (CRHP) of the Canadian Lung Association ($8,348 CAD). Principal Investigator: Keilty K. Co-investigators: Stremler R (PhD supervisor), Cohen E, Pullenayegum E, Spalding K. $23,348 CAD. Funding: Competitive.  
  • 2012 - 2013:  Surgical interventions and outcomes of children with trisomy 13 and 18 in Ontario. Norman Saunders Complex Care Grant Competition. Principal Investigator: Nelson K Co-Investigators: Mahant S, Cohen E, Guttmann A. $20,000

2011

  • 2011:  Developing and evaluating a support network for families caring for medically complex children.  PI:Muskat B, Co-Investigators:  Adams A; Cohen, E, Hetherington R, Hogan K, Netten K & Soscia J. ($24,549.50)
  • 2011/11 - 2013/11:  Co-Investigator. Developing and Evaluating a Support Network for Families Caring for Medically Complex Children.  Norman Saunders Complex Care Initiative Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigator: Muskat B. Co-investigators: Adam S, Cohen E, Hetherington R, Netten K, Soscia J. $24,549 CAD. Funding: Competitive.
  • 2011/12 - 2012/12:  Co-Investigator. Gastric flora in gastrostomy fed children with neurologic impairment on acid suppression medication.  Pediatric Consultants Partnership Creative Professional Activities Grant, The Hospital for Sick Children. Principal Investigator: Rapoport A. Co-Investigators: Cohen E, Mahant S, Richardson S, Avitzur Y. $10,000 CAD. Funding: Competitive.

2010

  • 2010/12 - 2012/12:  Principal Investigator. A process evaluation of the Integrated Complex Care Coordination Model (ICCM).  Norman Saunders Complex Care Initiative Grant Competition, Norman Saunders Complex Care Initiative. Principal Investigators: Cohen E, Kingsnorth S. Co-investigators: Keilty K, Bruce-Barrett C, Daub S, Kitch T. $20,490 CAD. Funding: Competitive.
  • 2010 - 2011:  The natural history of swallowing dysfunction in infants with dysphagia.  Marcus S, Mahant S, Traubici J, Friedman JN: Norman Saunders Complex Care Initiative, The Hospital for Sick Children ($10,634) (SRI)
  • 2010 - 2011:  Effectiveness of a new neuromuscular electrical stimulation (NMES) treatment technique in the management of young infants with severe dysphagia: A prospective pilot study.  Mahant S, Marcus S, Traubici J, Friedman JN: Paediatric Consultants CPA Grant ($9,080 ) (SRI)