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Paediatric Medicine
Paediatric Medicine

Research and Publications

2017

  • Berry JG, Ash AS, Cohen E, Hasan F, Feudtner C, Hall M: Contributions of Children with Multiple Chronic Conditions to Pediatric Hospitalizations in the United States: A Retrospective Cohort Analysis. Hosp Pediatr. 2017 Jun 20. Pii: hpeds.2016-0179. [Epub ahead of print]. PMID: 28634168] (Impact Factor: 0.7). C
  • Oei K, Hayeems RZ, Ungar WJ, Cohn RD, Cohen E: Genetic Testing Among Children in a Complex Care Program. Children (Basel) 2017 May 22;4(5). pii: E42. doi:10.3390/children4050042. PMID: 28531152 SRA   
  • Freedman SB, Rodean J, Hall M, Alpern ER, Aronson PL, Simon HK, Shah SS, Marin JR, Cohen E, Morse RB, Katsogridakis Y, Berry JG, Neuman MI: Delayed Diagnoses in Children with Constipation: Multicenter Retrospective Cohort Study. J Pediatr. 2017 Apr 28. Pii: S0022-3476(17)30478-X. doi: 10.1016/j.peds.2017.03.061. [Epub ahead of print]. PMID: 28457526. (Impact Factor: 3.9) C
  • Roth A, Rapoport A, Widger K, Friedman JN. General paediatric deaths over three time periods. Paediatr Child Health 2017, 80-83 doi: 10.1093/pch/pxx005 SRI

Book Chapter:  Mahant S, Fine B, Cohen E: Feeding Tubes. In: Caring for the Hospitalized Child: A Handbook of Inpatient Pediatrics, 2nd Edition (Rauch D, Gershel J, eds).  American Academy of Pediatrics, 2017. SR

2016

  • Nelson, KE, Rosella LC, Mahant S, Guttman A. Survival and surgical interventions for children with trisomy 13 and 18. JAMA. 2016; 316:420-428. CA
  • Gold J, Hall M, Shah S, Thomson J, Subramony A, Mahant S, Mittal V, Wilson KM, Morse R, Mussman G, Hametz P, Montalbano A, Parikh K, Ishman S, O’Neill M, Berry JG. Long length of hospital stay in children with medical complexity. J Hosp Med. 2016;11(11):750-756.  doi: 10.1002/jhm.2633.  CA
  • Kapadia MZ, Joachim KC, Balasingham C, Cohen E, Mahant S, Nelson KE, Maguire JL, Guttmann A, Offringa M. A core outcome set for children with feeding tubes and neurologic impairment: A systematic review.  Pediatrics. 2016 Jul;138(1). pii: e20153967. doi: 10.1542/peds.2015-3967.  CA
  • Hudson A, Macdonald M, Friedman JN, Blake K. CHARGE syndrome gastrointestinal involvement: From mouth to anus. Clinical Genetics Accepted manuscript online: 13 OCT 2016 09:21AM EST | DOI: 10.1111/cge.12892 C
  • Cohen E, Horváth-Puhó E, Ray JG, Pedersen L, Adler N, Ording AG, Wise PH, Milstein A,  Toft Sørensen H. Association between the birth of an infant with major congenital anomalies and subsequent risk of mortality in their mothers. JAMA. 2016 Dec 20; 316(23):2515-2524. 1-10. Doi:10.1001/jama.2016.18425. PMID: 27997654. (Impact Factor: 37.7) PA
  • Schor EL, Cohen E: Apples and Oranges: Serious Chronic Illness in Adults and Children. J Pediatr. 2016 Sep 23. pii: S0022-3476(16)30881-2. doi: 10.1016/j.jpeds.2016.08.098. (Epub ahead of print]. PMID: 27671116. (Impact Factor: 3.9)  SRA
  • Kapadia MZ, Joachim KC, Balasignham C, Cohen E, Mahant S, Nelson K, Maguire JL, Guttmann A, Offringa M: A Core Outcome Set for Children with Feeding Tubes and Neurologic Impairment: A Systematic Review. Pediatrics. 2016 Jul; 138(1). pii: e20153967. doi: 10.1542/peds.2015-3967. PMID: 27365302. (Impact Factor: 5.5) C
  • Bhawra J, Toulany A, Cohen E, Moore Hepburn C, Guttmann A: Primary care interventions to improve transition of youth with chronic health conditions from paediatric to adult healthcare: a systematic review. BMJ Open 2016 May 5;6(5):e011871. doi: 10.1136/bmjopen-2016-011871. PMID: 27150188. (Impact Factor: 2.3) C
  • Redouane B, Cohen E, Stephens D, Keilty K, Mouzaki M, Narayanan U, Moraes T, Amin R: Parental perceptions of quality in life in children on long-term ventilation at home as compared to Enterostomy tubes. PLoS One. 2016 Feb 25;11(2):e0149999. Doi: 10.137/journal.pone.0149999. eCollection 2016. PMID: 26914939. (Impact Factor: 3.2) C
  • Cohen E, Gandhi S, Toulany A, Moore Hepburn C, Fu L, Orkin J, Levy D, Stephenson A, Guttmann A: Health care use during transfer to adult care among youth with chronic conditions. Pediatrics 2016 Mar;137(3):1-9. doi: 10.1542/peds.2015-2734. Epub 2016 Feb 23. PMID: 26933203. (Impact Factor: 5.5) PA

2015

  • Nelson KE, Lacombe-Duncan A, Cohen E, Nicholas DB, Roseilia LC, Guttmann A, Mahant S. Gastrostomy tubes in children with neurologic impairment: A systematic review of family experiences. Pediatrics. Originally published online June 29, 2015. DOI: 10.1542/peds.2015-0127  SRA
  • Marcus S, Friedman JN, Lacombe-Duncan A, Mahant S. Neuromuscular electrical stimulation for treatment of dysphagia in infants with neurologic impairment: a prospective pilot study. BMC Research Notes. (Submitted July 2015). SRA
  • Collaborator. Cohen E, Gandhi S, Toulany A, Moore Hepburn C, Fu L, Orkin J, Levy D, Stephenson A, Guttmann A: Health care use during transfer to adult care among youth with chronic conditions. doi: 10.1542/peds.2015-2734. PMID:26933203. Pediatrics 137(3), March 2016 e2 0152734.
  • Keilty K, Cohen E: Caring for the Family Caregiver: Lessons Learned in Child Health. Healthcare Papers. 2015 April; 15(1): 40-6. doi:10.12927/hcpap.2015.24397. PMID: 26626116. SRA
  • Keilty K, Cohen E, Ho M, Spalding K, Stremler R: Sleep disturbance in family caregivers of children who depend on medical technology: a systematic review.  Journal of Pediatric Rehabilitation Medicine. 2015 Jun 15;8(2):113-30. Doi: 10.3233/PRM-150325. PMID: 26409865. (Impact Factor: 1.3) C
  • Nelson KE, Lacombe-Duncan A, Cohen E, Nicholas DB, Rosella LC, Guttmann A, Mahant S: Family Experiences with Feeding Tubes in Neurologic Impairment: A Systematic Review. Pediatrics. 2015 Jul;136(1):e140-51. Doi: 10.1542/peds.2014-4162. PMID: 26122806. (Impact Factor: 5.5)  C
  • Barry JG, Hall M, Cohen E, O’Neill M, Feudtner C: Ways to identify children with medical complexity and the importance of why. J Pediatr. 2015 Aug;167(2):229-37. doi:10.1016/jpeds.2015.04.068. Epub 2015 May 28. PMID: 26028285. (Impact Factor: 3.9) C
  • Amin R, Vresk L, Cohen E: Nutritional and metabolic assessment for children receiving long-term ventilation at home: A call to action for clinicians? doi:10.1016/jpeds.2014.10.071. Epub 2014 Nov 5. No abstract available.  J Pediatr. 2015: 166(2): pp 228-9. PMID: 25620508. (Impact Factor: 3.9) SRA

2014

  • Nelson K, Mahant S. Shared decision-making about assistant technology for the child with severe neurologic impairment. Pediatr Clin N Am. 2014 Aug; 61(4):641-652. SRA
  • Schwartz KL, Richardson SE, Ward KN, Donaldson C, MacGregor D, Banwell B, Mahant S, Bitnun A. Delayed primary HHV-7 infection and serious neurologic disease in children. Journal of Pediatrics. 2014 Jun;133(6):e1541-7. CA
  • Apkon M, Friedman JN: Planning for effective hospital discharge. JAMA Pediatr. 2014;168(10):890-891 (invited editorial) CPA.
  • Quigley L, Lacombe-Duncan A, Adams S, Moore Hepburn C, Cohen E.  (2014). A qualitative analysis of information sharing for children with medical complexity within and across health care organizations.  BMC Health Services Research 14 (283). C
  • Guttmann A, Cohen E, Kumar M, Hasanaj Q: Demographic, clinical and health service utilization profiles of children with persistently high health care needs in Ontario.  Report to MOHLTC and Provincial Council for Maternal and Child Health 2014. C
  • Mahant S, Jovcevska V, Cohen E: Decision-making around gastrostomy feeding in children with neurologic disabilities [CRD/DARE/12011003838].  National Institute for Health Research, UK.  University of York, Centre for Reviews and Dissemination 2014.  SRA   
  • Kuo DZ, Goudie A, Cohen E, Houtrow A, Agrawal R, Carle AC, Wells N: Inequities in health care needs for children with medical complexity.  Health Affairs 2014: 33(12): pp 2190-98. PMID: 25489038. (Impact Factor: 5.2) C
  • Cohen E, Patel H: Responding to the rising number of children living with complex chronic conditions. doi: 10.1503/cmaj. 141036. Epub 2014 Oct 14.  Canadian Medical Association Journal. 2014: 186(16): pp 1199-200. PMID: 25316900. (Impact Factor: 6.9) PA
  • Fayed N, Kraus de Camargo OK, Elahi I, Dubey A, Fernandes RM, Houtrow A, Cohen E: Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions.  Quality of Life Research 2014: 23(3): pp 751-7. PMID: 24026628. (Impact Factor: 2.5) SRA
  • Quigley L, Lacombe-Duncan A, Adams S, Hepburn CM, Cohen E: A qualitative analysis of information sharing for children with medical complexity within and across health care organizations.  BMC Health Services Research 2014: 14: pp 283. PMID: 24981205. (Impact Factor: 1.6) SRA

2013

  • Dewan T, Cohen E: Children with medical complexity in Canada.  Paediatrics & Child Health 2013: 18(10): pp 518-22. PMID: 24497777. (Impact Factor: 1.0) SRA
  • Kingsnorth S, Lacombe-Duncan A, Keilty K, Bruce-Barrett C, Cohen E: Inter-organizational Partnership for Children with Medical Complexity: The Integrated Complex Care Model [doi:10.1111/cch.12122].  Child: Care, Health and Development 2013. PMID: 22008576. (Impact Factor: 1.4) SRA
  • Jaskolka D, Brown N, Cohen E, Mounstephen W, Connolly B: Evaluating the implementation of a quality improvement initiative: weekend gastrojejunostomy tube maintenance service in a tertiary pediatric center.  Canadian Association of Radiologists Journal 2013: 64(3): pp 229-35. PMID: 22503326. (Impact Factor: 1.1) C
  • Adams S, Cohen E, Mahant S, Friedman JN, MacCulloch R, Nicholas DB: Exploring the usefulness of comprehensive care plans for children with medical complexity (CMC): a qualitative study.  BMC Pediatrics 2013: 13: pp 10. PMID: 23331710. (Impact Factor:1.8) C
  • Berry JG, Agrawal RK, Cohen E, Kuo DZ: The Landscape of Medical Care for Children with Medical Complexity.  Children's Hospital Association, Overland Park, KS, USA. 2013. C
  • Barnhart DC , Hall M , Mahant S, Goldin AB, Berry JG, Faix RG, Dean JM, Srivastava R. Effectiveness of fundoplication at the time of gastrostomy in infants with neurological impairment. JAMA Pediatrics. 2013 Oct 1; 167(10): 911-8. CA
  • Tjon J, Pe M, Soscia J, Mahant S. The Efficacy and Safety of Proton Pump Inhibitors in Pediatrics: a Review. Pharmacotherapy. 2013 Sep;33(9):956-71. SRI
  • McLaren A, Marcon M, Friedman JN: A 12-year-old boy with difficulty swallowing. Paediatr Child Health August 2013 18(7); 353-355. SRI
  • Adams S, Cohen E, Mahant S, Friedman JN, MacCulloch R, Nicholas D:  Exploring the usefulness of comprehensive care plans for children with medical complexity (CMC): a qualitative study. DOI:10.1186/1471-2431-13-10. BMC Pediatrics, Jan 2013 C

Book Chapter:  Mahant S, Cohen E. Gastrostomy Tubes: In: Caring for Hospitalized Child A Handbook of Inpatient Pediatrics  (Rauch D, Gershel J). AAP Publications, Elk Grove Village, Illinois. Jan 2013. Co-PA

Book Chapter: Friedman JN, Weinstein M:  Technologic devices in the child with medical complexity.  In: Comprehensive Pediatric Hospital Medicine 2nd edition. The McGraw-Hill Companies Inc. 2013 PA

Book Chapter:  Adams, S.: Snoring and Obstructive Sleep Apnea.  In:  The A to Z of Children’s Health Care Book (Friedman. J, Saunders N, &Saunders. N ed).  Robert Rose Inc, Toronto. 2013: pp 364-367. PA

2012

  • Mahant S, Cohen E, Rosenbaum P: Decision-making about Assistive Technology Interventions in Children with Disabilities: Considerations for Service Providers Working with Families (http:/www.canchild.ca/en/canchildresources/resources/Keeping Current assistive technology.pdf).  CanChild Centre for Childhood Disability Research 2012. C
  • Cohen E, Berry JG, Camacho X, Anderson G, Wodchis W, Guttmann A: Patterns and costs of health care use of children with medical complexity.  Pediatrics 2012: 130(6): pp e1463-70. PMID: 23184117. (Impact Factor: 5.5)  PA
  • Soscia J, Mahant S. Nutrition Support in Children with Neurologic Disabilities. Current Pediatric Reviews. 2012;8(2):103-113. Co-PA
  • Simon TD, Mahant S, Cohen E. Pediatric hospital medicine and children with medical complexity: past, present, and future section in Pediatric Hospitalist Medicine: Coming of Age. Current Problems in Pediatric and Adolescent Health Care. 2012;42(5):113-119. CA
  • Daneman D, Friedman JN:: Children who are medically fragile.  Current Pediatric Reviews. May 2012: 8(2): 87-92. CPA (Invited Editorial)
  • Cohen E, Friedman JN: Caring for Children with Medical Complexity: Definitions, Challenges and Solutions.  Current Pediatric Reviews 2012: 8(2): pp 93-102. PA
  • Cohen E, Lacombe-Duncan A, Spalding K, MacInnis J, Nicholas D, Narayanan UG, Gordon M, Margolis I, Friedman JN: Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration.  BMC Health Services Research 2012: 12: pp 366. PMID: 23088792. (Impact Factor: 1.6) PA

Book Chapter:  Adams S, Mahant S. Cerebral Palsy: In: Pediatric Acute Care (Reuter-Rice K, Nachtsheim B, eds). Jones and Bartlett Publishers, Sudbury, Massachusetts 2012. Co-PA

Book Chapter:  Daneman D, Friedman JN.  Complex Care. Special Issue.  Current Pediatric Reviews.  2012. CPA

Book Chapter:  Adams S, Mahant S. Gastroesophageal Reflux Disease. In: Pediatric Acute Care (Reuter-Rice K, Nachtsheim B, eds). Jones and Bartlett Publishers, Sudbury, Massachusetts 2012. Co-PACohen E, Friedman JN:  Caring for children with medical complexity: Definitions, challenges and solutions.  Current Pediatric Reviews.  May 2012 8(2): 92-102. SRI (Invited Review)

2011

  • Luca P, Coffey M, Adams S, Ragone A, Cohen E, Matlow A: Using a novel patient medication list for ambulatory pediatric patients within a hospital-based complex care program.  Joint Commission journal on quality and patient safety / Joint Commission Resources 2011: 37(12): pp 560-7. PMID: 22235541. C
  • Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey PH: A national profile of caregiver challenges among more medically complex children with special health care needs.  Archives of Pediatrics and Adolescent Medicine 2011: 165(11): pp 1020-6. PMID: 22065182. (Impact Factor: 5.7) C
  • Cohen E, Bruce-Barrett C, Kingsnorth S, Keilty K, Cooper A, Daub S: Integrated complex care model: lessons learned from inter-organizational partnership.  Healthcare quarterly (Toronto, Ont.) 2011: 14 Spec #3: pp 64-70. PMID: 22008576. (Impact Factor: 0.2) PA
  • Berry JG, Agrawal R, Kuo DZ, Cohen E, Risko W, Hall M, Casey P, Gordon J, Srivastava R: Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity.  Journal of Pediatrics 2011: 159(2): pp 284-90. PMID: 21429511. (Impact Factor: 5.5)  C
  • Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SK, Simon TD, Srivastava R: Children with medical complexity: an emerging population for clinical and research initiatives.  Pediatrics 2011: 127(3): pp 529-38. PMID: 21339266. (Impact Factor: 5.5)  PA
  • Mahant S, Jovcevska V, Cohen E: Decision-making around gastrostomy-feeding in children with neurologic disabilities.  Pediatrics 2011: 127(6): pp e1471-81. PMID: 21624876. (Impact Factor: 5.5)  SRA
  • Johnstone J, Leung J, Friedman JN: Nasogastric tube misadventures.  Clinical Pediatrics.  Oct 2011: 50(10):983-986. SRI
  • Soscia, J & Freidman, J.  A Guide to the Management of Common Gastrostomy and Gastrojejunostomy Tube Problems.  Paediatrics & Child Health, 2011; 161(5): 281-287.
  • Luca P, Coffey M, Adams S, Ragone A, Cohen E, Matlow A. (2011). Using a novel patient medication list for ambulatory pediatric patients within a hospital-based complex care program. The Joint Commission Journal on Quality and Patient Safety 37 (12), 560-567. C
  • Cohen E, Jovcevska V, Kho DZ, Mahant S: Hospital-based comprehensive care programs for Children with Special Health Care Needs (CSHCN):  A systematic review. Archives of Disease in Pediatrics and Adolescent Medicine. 2011;165(6):554-561. CA

Book Chapter:  Adams S, Mahant S. Gastroesophageal Reflux Disease: In: Pediatric Acute Care (Reuter-Rice K, Nachtsheim B, eds). Jones and Bartlett Publishers, Sudbury, Massachusetts 2011. Co-PA

Book  Chapter:  Adams S, Mahant S. Cerebral Palsy: In: Pediatric Acute Care (Reuter-Rice K, Nachtsheim B, eds). Jones and Bartlett Publishers, Sudbury, Massachusetts 2011. Co-PA

2010

  • Cohen E, Mahant S, Adams S, Friedman J, Jovcevska V, Rosenbaum P: The impact of a complex care clinic in a children's hospital. Child: Care, Health and Development 2010;36(4):574-582. C