Scoring the PeLTQL
The direction of scoring for the five-point Likert scale used in the questionnaire is reversed so that
a higher score indicates better quality of life. The final score is scaled so that possible final
scores range from zero to 100.
For Question #8, the patient selected “4 – often” as their answer. This will be written as a score of 25 on the scoring sheet.
Please see Scoring Sheet for more information.
What do these scores mean?
Clinical use of PeLTQL
A higher score indicates better HRQOL as perceived by the individual completing the questionnaire. Until this data is available, members of the health-care team can review the PeLTQL scoring for individual questions to see if there are particular domains or specific areas of HRQOL that the individual is struggling with, and then target these for intervention or discussion by consulting with additional health-care professionals.
Lower patient PeLTQL scores correlated strongly with clinical cut-scores on validated anxiety and depression tools for children. This may indicate that an individual has probable anxiety or depression. If this is the case, further screening for mental health concerns should be carried out with the appropriate mental health screening tools.
Attention to children's mental health issues by health-care providers is an emerging concern, and the paediatric liver transplant population is no exception4. Further research examining the prevalence of clinically significant anxiety and depression in the post liver transplant population is needed, and the PeLTQL may be a helpful non-stigmatizing tool to begin discussions with patients and their parents related to the often sensitive issue of mental health.
Research Use of PeLTQL
Interpretation of PeLTQL scores is an area ongoing research by the development. Assessment of the responsiveness (sensitivity to change) of the PeLTQL is a psychometric property of the tool that is still being established. Also establishing cut-scores and minimal clinically important difference for the PeLTQL is a work in progress.
With time, and broader use of the PeLTQL, we will be able to establish additional ‘normative’ data by which to benchmark or compare between patient populations of liver transplant recipients.