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CPCHILD™ Questionnaire
CPCHILD™ Questionnaire

The CPCHILD™ questionnaire

The items for the pilot questionnaire were derived from recommendations of caregivers of children with severe disabilities, healthcare professionals across multiple disciplines involved in the care of these children and from a review of other generic and condition specific measures of health related quality of life in children.

The initial questionnaire was tested in cross-sectional iterative survey of caregivers of children with cerebral palsy and traumatic brain injury, and solicited written feedback about the overall content and structure of the questionnaire and about the wording, relevance and importance of each item, and suggestions for additional items in each domain. The resulting CPCHILD™ questionnaire underwent a number of studies to evaluate its reliability and validity.

These studies have demonstrated that the CPCHILD™ is a reliable and valid measure of caregivers’ perspectives on the health status, comfort, well being, and ease of caregiving of children with severe developmental disabilities, and is a useful proxy measure of the health related quality of life of these children (Please refer to the Publications/presentations for details).

The CPCHILD™ currently consists of 37 items distributed among six sections representing the following domains:

  1. Activities of daily living/personal care (nine items)
  2. Positioning, transferring and mobility (eight items)
  3. Comfort and emotions (nine items)
  4. Communication and social interaction (seven items)
  5. Health (three items)
  6. Overall quality of life (one item)

In Section 7, caregivers rate the importance of each of these items’ contribution to their child’s quality of life.

 Download CPCHILD™ in Acrobat format (English – Parent/Caregiver)

For those children who are cognitively able this is a child version to complete.

 Download CPCHILD™ in Acrobat format (English – Child)

Translation and subsequent validation projects are underway in many countries.  We will include translated versions of the CPCHILD™here as they become available.

 

Download CPCHILD™ in Acrobat format (Bahasa Malaysia)
Download CPCHILD™  in Acrobat format (Brazilian Portuguese)
Download CPCHILD™  in Acrobat format (Canadian French - Parent/Caregiver)
Download CPCHILD™  in Acrobat format (Canadian French - Child)
Download CPCHILD™ in Acrobat format (Danish)
Download CPCHILD™ in Acrobat format (Dutch)
Download CPCHILD™ in Acrobat format (Farsi)
Download CPCHILD™  in Acrobat format (German)
Download CPCHILD™  in Acrobat format (Hebrew)
Download CPCHILD™ in Acrobat format (Korean)
Download CPCHILD™  in Acrobat format (Norwegian)
Download CPCHILD™ in Acrobat format (Spanish)
Download CPCHILD™  in Acrobat format (Swedish – Parent/Caregiver)
Download CPCHILD™  in Acrobat format (Swedish – Child)
 


 

(Note: Further validation of the CPCHILD™ for its responsiveness is currently underway and the authors do not yet recommend the use of the copyrighted instrument until this work is completed).

The CPCHILD™ may help clinicians to identify areas that are impairing a child’s quality of life, determine what is most important to the child and caregiver, and monitor the child’s progress in a way that is meaningful to the family.

The CPCHILD™ could also be valuable in planning and evaluating programs of rehabilitation and as an outcome measure in clinical trials. Lastly, the CPCHILD™ may help health care providers to gain a deeper understanding of the evolving needs of children and families who are living with a severe disability. Striving to understand the factors that contribute to the wellbeing of these children is part of recognizing their value and fostering a system of care that is truly centred on patients and families.

Copyright © 2004 by The Hospital for Sick Children and Holland Bloorview Kids Rehabilitation Hospital.