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Areas of Care

Genetic and Electrolytes Clinic

About us

The Genetic and Electrolyte Clinic is a specialized clinic for the care of patients with a variety of different genetic disorders that affect their kidneys. It also cares for children who have electrolyte and acid base balance abnormalities caused by their kidneys. We are committed to delivering leading-edge specialized care and work alongside researchers to improve our treatments.

Contact us

New patients can reach us at 416-813-7333

Current patients can reach us at 416-813-7971

You can reach our clinic nurses at 416-813-7411 ext. 3 or 4

Clinic/registration location

The first thing to do is register at the Nephrology Clinic. The Genetic and Electrolyte Clinic is part of the Nephrology Clinic, located on the Main Floor near the Black Wing elevators.

From the University Avenue entrance, turn right at the first hallway (towards Shoppers Drug Mart). Once in front of Shoppers Drug Mart, walk down the main hall (Main Street), past the Black Wing elevators and turn left down the first hallway. The clinic is on the left side of the hall, by the Plastics Clinic.

From the Elizabeth Street entrance and parking garage elevators, walk down Main Street towards Shoppers Drug Mart. At the Family Centre/library turn right, down the hall. We are the first clinic you will find on the left side of this hall.

When you register, a SickKids identification (ID) band will be placed on your child. The band must be worn on your child's arm or ankle at all times. Check your child's ID band to make sure the information is correct. If your child is not wearing a band or has the wrong one, it can lead to errors that can result in the wrong care for your child. Staff must always check the band before providing care to your child. Your child must keep the band on at all times while at SickKids.

If you or your child are sick before your appointment

Call the clinic if you or your child have had a cold, cough, diarrhea, fever or rash within two days of your appointment, or have been sick with or exposed to chicken pox in the last three weeks. Your appointment may need to be rescheduled. 

Tell the clerk, nurse or doctor if your child has been in a hospital outside of Canada within the last 12 months. 

If you cannot come to your child’s appointment, it is important that you call the clinic as soon as possible to cancel and reschedule.

Be on time

Please ensure you arrive at least 60 minutes prior to your scheduled appointment.

If you are late, you may have to wait for other patients to be seen first. Allow lots of time to get to the hospital. It can take some time to get used to finding your way around and it is important to be on time for your child’s appointment. Staff will try to see your child as close to your appointment time as possible. Please understand that some patients being seen ahead of you may need more time than expected, and this can cause delay for others.

Bring the following

  • You must show valid health-care coverage at every visit. If you do not, you will be required to pay a fee for the visit, unless coverage or insurance can be verified.

Proof of health-care coverage must be valid at the time of visit (not expired).

    • If you live in Ontario, show your child’s valid Ontario Health Insurance Plan (OHIP) card.
    • If you live in another province, show your child’s provincial health-care card.
    • If you are a refugee claimant, show your child’s Interim Federal Health Program (IFHP) certificate.
    • If you have private health insurance, show the appropriate information or documentation.
    • If you are receiving support from a Community Health Centre (CHC), show a letter from the CHC.
  • Your appointment card or letter
  • Toys, books, nut-free snacks, diapers and formula to keep your child comfortable and occupied in case there is a wait
  • Any medical information, such as referral letters, test results, information about current therapies, X-rays, MRIs, ultrasounds or CT scans
  • All medications your child is currently taking (in original packaging), including alternative and complementary treatments

Important pre-appointment instructions

Unless your child has been instructed to fast, your child is permitted to eat and drink as normal.

Try not to bring other children to the appointment

If other children must come, please consider taking them to the Play Park during your visit. The Play Park is a free, fun and safe place for brothers and sisters of patients to play. It is open Monday to Friday from 8:30 a.m. to 4 p.m. and weekends from 11:30 a.m. to 3:15 p.m. It is located on the Main Floor of the Atrium, next to the parking elevators. All children over 2 ½ years of age are welcome. Trained staff and volunteers will watch your children carefully. You do not need to book in advance to use the Play Park. The Play Park number is 416-813-8884.

Latex allergy

Call the clinic before coming to the hospital if your child or anyone coming with them has a known or suspected allergy to latex.

Accessibility

All visitor entrances on the Main Floor are wheelchair accessible. SickKids has several wheelchair-accessible washrooms on the Main Floor. Both male and female washrooms in the Atrium have large change tables where children and teens can have diapers changed. There is another private wheelchair-accessible washroom with a large change table on the Service Floor of the Black Wing in Room S213, across the hall from Rehabilitation Services. Wheelchairs are available near the Atrium and University Avenue entrances.

Assistance dogs for children or parents with disabilities are allowed at SickKids. Please make sure they are clean and have up-to-date immunizations.

Interpreter Services

If you need an interpreter, please call the clinic before your appointment so we can arrange for an interpreter. There is no charge for an interpreter. Please give us at least 24 to 48 hours' notice to make it easier for us to find an interpreter for you.

What to expect during your visit

After registration, you will be given requisitions for a urine sample and blood work (if needed) and you may be directed to the Ultrasound Department (if one has been ordered). Please collect the urine sample in the bottle provided and drop it in the blue bin. If your child is in diapers, one of the clinic nurses will apply a urine bag when your child is brought into the clinic. If blood work is needed you will be directed to the Ambulatory Care Centre.

Once all the testing has been completed please check back in at the front desk to let them know you are done. You will then be asked to sit in the waiting room which is located in the main hallway across from the Family Centre. A nurse will call your child’s name when it is your turn to come into clinic. The nurse will measure your child’s height, weight and blood pressure. You will then be seen by one of the doctors. SickKids is a teaching hospital where you may be seen by a medical student, resident or a fellow who will do an initial assessment and subsequently review with a staff nephrologist, who will then come to discuss the results and the plan of care.

Please ensure you obtain new prescriptions for any kidney medications prior to leaving the clinic.

Genetic investigations for your child, siblings, parent or other relatives may be a part of your visit. For the test itself we will need only a small volume of blood. However, before collecting the blood we will explain the requested test, its rational and implications/complications and obtain your consent.

Appointments may take an extended period of time and we appreciate your patience.