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Areas of Care

Neonatal Neurodevelopmental Follow-up Clinic

About us

The Neonatal Neurodevelopmental Follow-Up Clinic assesses babies who have been admitted to the Neonatal Intensive Care Unit (NICU) or Cardiac Critical Care Unit (CCCU) and may be at risk for developmental issues due to reasons such as prematurity or serious medical problems during delivery or after birth.

Contact us

Phone: 416-813-5879
Fax: 416-813-8969
Email: neonatal.followup@sickkids.ca

Clinic/registration location

Our clinic is located next to the NICU on the 3rd floor in the Atrium.  Please come directly to the clinic to register.

When visiting SickKids an identification (ID) band will be placed on your child and must be worn on their arm or ankle at all times. To ensure your child is receiving the right care during their stay, the care team will use the ID band to check their name, date of birth and medical record number. If your child is sleeping, we’ll make sure to scan the ID band quickly and quietly so that we don’t disturb your child.  

The ID band is made of soft, latex-free material. There are two colours of ID bands: a black ID band indicates that your child has an allergy and a white ID band indicates there is no allergy. The allergy is not printed on the ID band, the care team will review the allergy in our electronic health record.

If your child’s ID band has fallen off or the information is incorrect, be sure to tell your care team. If they are not wearing an ID band or if they have the wrong one, it can lead to errors or delays that can result in the wrong care for your child.

Staff will always look at or scan the ID band before providing care to your child. This may involve

  • Asking parents or patients for two patient identifiers, such as the patient's full name and date of birth;
  • Scanning a barcode on the ID band to confirm the patient’s identity; or
  • Looking at the information on the ID band.

If you or your child are sick before your appointment

Call the clinic if you or your child have had a cold, cough, diarrhea, fever or rash within two days of your appointment, or have been sick with or exposed to chicken pox in the last three weeks. Your appointment may need to be rescheduled. 

Tell the clerk, nurse or doctor if your child has been in a hospital outside of Canada within the last 12 months. 

If you cannot come to your child’s appointment, it is important that you call the clinic as soon as possible to cancel and reschedule.

Be on time

Please ensure you arrive 15 minutes prior to your scheduled appointment to allow for time to register.

If you are late, you may have to wait for other patients to be seen first. Allow lots of time to get to the hospital. It can take some time to get used to finding your way around and it is important to be on time for your child’s appointment. Staff will try to see your child as close to your appointment time as possible. Please understand that some patients being seen ahead of you may need more time than expected, and this can cause delay for others.

Bring the following

  • You must show valid health-care coverage at every visit. If you do not, you will be required to pay a fee for the visit, unless coverage or insurance can be verified.

Proof of health-care coverage must be valid at the time of visit (not expired).

    • If you live in Ontario, show your child’s valid Ontario Health Insurance Plan (OHIP) card.
    • If you live in another province, show your child’s provincial health-care card.
    • If you are a refugee claimant, show your child’s Interim Federal Health Program (IFHP) certificate.
    • If you have private health insurance, show the appropriate information or documentation.
    • If you are receiving support from a Community Health Centre (CHC), show a letter from the CHC.
  • Your appointment card or letter
  • Toys, books, nut-free snacks, diapers and formula to keep your child comfortable and occupied in case there is a wait
  • Any medical information, such as referral letters, test results, information about current therapies, X-rays, MRIs, ultrasounds or CT scans
  • All medications your child is currently taking (in original packaging), including alternative and complementary treatments
  • If you are separated or divorced, bring along any legal papers that show who has custody of your child and who can make decisions about your child’s care. For more information, see protocol for separated families: roles, expectations and documentation required with respect to custody and access.
  • Contact information for your family doctor or paediatrician.
  • Supplies needed to keep your child comfortable and occupied during the clinic visit (formula, nut-free snacks, lunch, diapers, etc.).
  • If you are coming for your child’s 18-month or 36-month appointment and have received a package in the mail, please complete it and bring it with you.

The Ministry of Health and Long-Term Care requires that we check your child’s OHIP card every time you visit. If your child does not have a valid Ontario health card, you are required to pay for his or her care before your clinic visit. You can do this at the Business Office, located on the Main Floor near Shoppers Drug Mart. For more information on OHIP, please call 1-800-268-1154 (toll-free in Ontario). In Toronto, call 416-314-5518. The TTY line is 1-800-387-5559.

Try not to bring other children to the appointment

If other children must come, please consider taking them to the PlayPark during your visit. It is located on the Main Floor of the Atrium, next to the parking elevators. All children over 2 ½ years of age are welcome. Trained staff and volunteers will watch your children carefully. You do not need to book in advance to use the PlayPark. The PlayPark number is 416-813-8884.

Latex allergy

Call the clinic before coming to the hospital if you, your child or anyone coming with them has a known or suspected allergy to latex.


All visitor entrances on the Main Floor are wheelchair accessible. SickKids has several wheelchair-accessible washrooms on the Main Floor and gender-neutral washrooms throughout the hospital. Both male and female washrooms in the Atrium have large change tables where children and teens can have diapers changed. There is another private wheelchair-accessible washroom with a large change table on the Service Floor of the Black Wing in Room S213, across the hall from Rehabilitation Services. Wheelchairs are available near the Atrium and University Avenue entrances.

Assistance dogs for children, parents or caregivers with disabilities are allowed at SickKids. Please make sure they are clean and have up-to-date immunizations.

Interpreter Services

If you require our free Interpreter Services, please call the clinic before your appointment so we can arrange for a interpreter. Please give us at least 24 to 48 hours' notice to make it easier for us to find an interpreter for you.

What to expect during your visit

Our team includes Occupational Therapists, a Physiotherapist, Speech-Language Pathologists, Psychometrists, Psychologist, a Nurse Practitioner and Neonatologists.

Clinic visits are scheduled at 4, 8, 12, 18 and 36 months of age.  If your children was born early they will be assessed at their corrected age (their age based on their due date). Below is some information about each visit.

The 4 month Visit

At this visit we focus on:

Gross and Fine Motor skills such as:
• Head control
• Postural tone and reflexes
• Reaching and grasping toys

Social skills such as:
• Smiling, laughing, vocalizations
• Interacting and showing interest in others

The 8 month Visit

At this visit we focus on:

Gross and Fine Motor skills such as:
• Sitting, transitions and mobility skills
• Reach and grasp, and ability to explore toys

Early Communication skills such as:
• Babbling
• Engaging in and enjoying simple games like peek-a- boo, pat-a-cake

The 12 month Visit

The one year mark is considered a milestone clinic visit.  We continue to focus on gross motor, fine motor and communication skills. Your child’s development is now becoming increasingly complex and skills are becoming more integrated and refined.

The 18 and 36 month Visit

A detailed assessment of the child’s adaptive, learning and early problem solving abilities is completed. Our babies, now toddlers graduate at 36 months of age.

We send a written report of the assessment results to the pediatrician or family doctor after every visit. We also provide information and support to the family and the child.

For more information:

Division of Neonatology