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Patient and family resources
Patient and family resources

Nursing and Respite Services

Nursing Support in the Community
Nursing services at home are provided through the Community Care Access Centres (CCACs). Nursing support can look very different depending on the needs of the child. A CCAC coordinator will do an assessment of the child to determine what nursing support the child needs at home.

Respite

Medical respite care programs offer families a break from the daily routine of caregiving.  Respite is an essential component of pediatric palliative care. All parents need a break. But while most can access “babysitting” from the teenager down the street, this just isn’t an option for most parents of children with medical complexity. Medical respite involves caregiving for complex patients by well trained staff familiar with medical technology, usually for short periods of time (hours to days). Enhanced Respite Funding is available for families who qualify through the Ministry of Health (for more on Enhanced Respite Funding click here). These funds can be used to reimburse a trusted friend, family member or other caregiver to watch a medically fragile child at home for a period of time. Residential respite services are also available and some are free of charge. Residential respite includes 24-hour in-house clinical supervision for children with or without their families. Each program is unique; contact one directly to find out what other services they have to offer to your child and your family.
 

Some examples include: (please feel free to provide updated information via: lori.ives-baine@sickkids.ca

Darling Home for Kids (Milton)

LHIN Care in the Home- you can search for contact information by region

Emily’s House (Toronto)

Holland Bloorview Kids Rehabilitation Hospital

Kids Country Club (London and Cambridge)

Respite Services

Safe Haven