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Patient and family resources
Patient and family resources

What We Do

Identify and Implement Goals of Care

  • PACT can help your family establish goals of care by identifying what is most important to you and your child, and how your child’s care can reflect this. Over time, your child’s condition might change. PACT can help you plan for the future so that difficult decisions need not be made during a crisis.
  • Hard choices may be needed, including ones about the possible use of medical technology (devices to help with breathing) or transplantation. PACT will work with you and your child to help you make the best possible decisions in line with your specific goals of care.

Difficult Discussions

  • Children with serious medical conditions and their family members often have fears and concerns about what will happen over time. Although it can be difficult to discuss these things, ignoring them does not make them go away. PACT is available to speak with you and your child about things that worry you. These conversations help decrease fears by clarifying misconceptions or creating a plan to address specific concerns.
  • PACT is also available to help siblings cope with the changing situation and to address their own unique worries.

Management of Pain and Other Symptoms

  • Serious medical conditions may be accompanied by distressing symptoms, such as breathing difficulties, pain, nausea and vomiting and other sources of discomfort. PACT can help find solutions to reduce these symptoms.

End-of-life care

  • Should end-of-life care be needed, PACT will be there to provide your family with support in your preferred setting, help create meaningful legacies/memories, ensure your child’s comfort and to support you during your grieving.