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Clinical and Metabolic Genetics
Clinical and Metabolic Genetics

22q DS Resources and Links

Did you know...

 

Adult patients (17 years and older) with 22q11.2DS can be seen at The Dalglish Family 22q Clinic at Toronto General Hospital. 

 

Visit AboutKidsHealth to learn about the genetic causes of 22q11 deletion syndrome, diagnosis, treatment and medical features:

22q11 deletion syndrome

22q11 deletion syndrome: Genetics

22q11 deletion syndrome: Medical features

 

General Parenting Books

  • How to Talk so Kids will Listen and Listen So Kids Will Talk. Adele Farber and  Elaine Mazlish.
  • 1-2-3- Magic.  Thomas W. Phelan.
  • Understanding Temperament: Strategies for Creating Family Harmony.  Lyndall Shick.
  • Kids are Worth It! (General book about parenting styles/establishing limits etc). Barbara Coloroso.
  • Parenting with Wit and Wisdom in times of chaos and loss (includes section on living with illness/disability). Barbara Coloroso
  • The Bully, the Bullied and the Bystander: How parents and teachers can break the cycle of violence. Barbara Coloroso
  • Raising your Spirited Child: A Guide for Parents whose child is more Intense, Sensitive, Perceptive, Persistent, Energetic. Mary Kurcinka.
  • Helping your Angry Child: A Workbook for you and Your Family.  Darlyne Gaynor Nemeth.

 

Books About 22q Deletion Syndrome

  • Footprintsof Hope: VCFS (Velo-Cardio-Facial Syndrome). Raymond Geoffrey Tanner, Freestyle Publications, 2004
  • Missing Genetics Pieces: Strategies for Living with VCFS (The Chromosome 22q11 Deletion). Sherry Baker-Gomez, Desert Pearl Publishing 2004
  • Faces of Sunshine Handbook for Families. Children’s Hospital of Philadelphia, 22q and You Clinic

General Web sites

  • Family Service Ontario - This site lists member counselling agencies of Family Service Ontario, a network of funded community counselling agencies that provide counselling on a sliding fee scale.
  • Parentbooks - This is the site of Parent Books, a bookstore downtown Toronto that carries books about a vast array of parenting/child issues.  Their Web site contains a complete listing of their titles, and they will ship books - the Staff is quite knowledgeable about locating helpful resources.
  • American Academy of Child & Adolescent Psychiatry - American Academy of Child and Adolescent Psychiatry - see facts for families section.
  • Canadian Mental Health Association - Canadian Mental Health Association - see info center - pamphlets.

Websites About 22q Deletion Syndrome