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Clinical and Metabolic Genetics
Clinical and Metabolic Genetics

22q Deletion Syndrome Clinic

Event Notices

Sunday May 26, 2019 - 8th Annual 22q at the Zoo event

The SickKids 22q11 Deletion Syndrome Clinic and the Dalglish Family 22q Clinic will be hosting the 8th Annual 22q at the Zoo International Awareness Day at the Toronto Zoo. 

This is a great opportunity for patients of all ages and their families to network and enjoy a day with other families and clinic staff at the Toronto Zoo. 

Visit the event page for more information and registration details. Register before May 17, 2019! 

Our mission  

To provide and promote coordinated, interdisciplinary care and support to children with 22q11 deletion syndrome and their families.

Our vision is to be internationally and nationally recognized as a centre of excellence for clinical care, research and community education with respect to the 22q11 deletion syndrome paediatric population.

Our goals:

  • To provide coordinated, timely access to health care and community services for children with 22q11 deletion syndrome.
  • To establish evidence-based clinical care guidelines for children with 22q11 deletion syndrome.
  • To educate community health care providers about the needs and issues of the 22q11 deletion syndrome population.
  • To identify adequate resources for individuals with 22q11 deletion syndrome transitioning to adulthood.
  • To initiate and participate in clinical and laboratory research initiatives that will further our understanding and drive evidence based medical follow up interventions for this group of patients.

The 22q Deletion Syndrome Clinic welcomes donations to support its programs such as funding for psychological assessments and community education. Please click on the link below to be connected to SickKids Foundation Donation web page which is a secure site. Also, please indicate that the donation is toward the 22q DS Clinic in the "Additional Comment" box.