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Clinical and Metabolic Genetics
Clinical and Metabolic Genetics

22q Deletion Syndrome Clinic

Upcoming events:

Virtual Event Replaces 10th Annual 22q At The Zoo Event

Due to the COVID-19 pandemic, the 10th Annual 22q at the Zoo – Worldwide Awareness Day  scheduled to take place at the Toronto Zoo on May 24, 2020 has been cancelled.

Instead the International 22q Foundation is inviting  you to participate in a Virtual 22q at the Zoo Celebration on Sunday May 17, 2020.

Please see the link below for additional details:


We look forward to seeing you at our Annual 22q At the Zoo again in 2021!

Our mission:

To provide and promote coordinated, interdisciplinary care and support to children with 22q11 deletion syndrome and their families.

Our vision is to be internationally and nationally recognized as a centre of excellence for clinical care, research and community education with respect to the 22q11 deletion syndrome paediatric population.

Our goals:

  • To provide coordinated, timely access to health care and community services for children with 22q11 deletion syndrome.
  • To establish evidence-based clinical care guidelines for children with 22q11 deletion syndrome.
  • To educate community health care providers about the needs and issues of the 22q11 deletion syndrome population.
  • To identify adequate resources for individuals with 22q11 deletion syndrome transitioning to adulthood.
  • To initiate and participate in clinical and laboratory research initiatives that will further our understanding and drive evidence based medical follow up interventions for this group of patients.

The 22q Deletion Syndrome Clinic welcomes donations to support its programs such as funding for psychological assessments and community education. Please click on the link below to be connected to SickKids Foundation Donation web page which is a secure site. Also, please indicate that the donation is toward the 22q DS Clinic in the "Additional Comment" box.