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Bibliographies

Below are some key articles on transition policy that have emerged in about the last two decades (since 1996) and our top 10 favorite transition articles (as listed in our resource manual).

If you would like to access our current Endnote Database please contact us.  

Key articles on transition policy

Kastner TA & The Committee on Children with Disabilities. American Academy of Pediatrics. Managed care and children with special health care needs . Pediatrics. December 2004;114(6):1693-98.

American Academy of Pediatrics. Sponsored by the health resources and services administration, Maternal and Child Health Bureau. The Pediatric Alliance for Coordinated Care: evaluation of a medical home model. Pediatrics. May 2004;113(5 Suppl); 1507-16.

Rosen DS, Blum RW, Britto M, Sawyer SM & Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions . Position paper of the Society for Adolescent Medicine. Journal of Adolescent Health. 2003;33:309-11.

Blum RW. American Academy of Pediatrics. Introduction: improving transition for adolescents with special health care needs from pediatric to adult-centered health care . Pediatrics, Supplement. December 2002;110;1301-03.

American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians – American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs.  Pediatrics. 2002;110(6):1304-06.

American Academy of Pediatrics Committee on Children with Disabilities. The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college . American Academy of Pediatrics. Committee on Children with Disabilities. Pediatrics. 2000;106:854-6.

American Academy of Pediatrics Committee on Children with Disabilities and Committee on Adolescence. Transition of care provided for adolescents with special health care needs . Pediatrics. 1996;98:12-36.

American Academy of Pediatrics. Committee on Children with Disabilities. Sexuality education of children and adolescents with developmental disabilities . Pediatrics February 1996;97(6):275-78.

Blum RW. Summary of conference recommendations. Journal of Adolescent Health. 1995;17:6-9.

Adolescent Medicine Committee. Canadian Paediatric Society. Care of the adolescent with chronic conditions . Paediatrics and Child Health. 2006;11(1):43-48. Positions Statement # AH-2006-01.

McManus MA, Newacheck P. Health insurance differentials among minority children with chronic conditions and the role of federal agencies and private foundations in improving financial access . Pediatrics: Official Journal of the American Academy of Pediatrics. 1993;91(No. 5): 1040-47.

White PH. Access to health care: health insurance considerations for young adults with special health care needs/disabilities . Pediatrics. 2002;110(6):1328-35.

Kaufman M, Pinzon J. Transition to adult care for youth with special health care needs. Paediatrics and Child Health . 2007:12 (9);785-88.

10 favorite transition articles

Amaria K, Stinson J, Cullen-Dean G, Sappleton K, Kaufman M: Tools for addressing systems issues in transition. Health care Quarterly; 2011 Oct;14 Spec No 3:72-6

Anthony SJ, Kaufman M, Drabble A, Seifert-Hansen M, Dipchand AI, Martin, K. Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. American Journal of Transplantation 2009; 9(3) 614-619

Gorter JW, Stewart D & Woodbury-Smith M. Youth in transition: care, health and development. Child: Care, Health and Development 2011, 37(6): 757–763

Grant C, Pan J. A comparison of five transition programmes for youth with chronic illness in Canada. Child: Care, Health and Development 2011; 37(6): 815–820

Kaufman M. Transition of cognitively delayed adolescent organ transplant recipients to adult care. Pediatric Transplantation 2006; Jun;10(4):413-7.

Kovacs AH, Cullen-Dean G, Aiello S, Wasyliw C, Harrison JL, Li, Q, Oeschslin EN. The Toronto congenital heart disease transition task force. Progress in Pediatric Cardiology 2012; 34, 12-26.

Lindsay S. Kingsnorth S. Handani Y. Barriers and facilitators of chronic illness self-management among adolescents: A review and future directions. Journal of Nursing and Chronic Illness in Health Care 2011, 3: 186-208

McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 2007, 46(1):161-8.

Sable C. et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease. The transition process and medical and psychosocial issues: a scientific statement from the American Heart Association: Circulation 2011, published online Feb 28, 2011;

Stinson J. An internet-based self-management program with telephone support for adolescents with arthritis: a pilot randomized controlled trial. The Journal of Rheumatology 2010; 37(9); 1944-1952