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Areas of Care

Down Syndrome Clinic

About us

Children with Down syndrome require extra support developmentally and medically. The Down Syndrome Clinic is a central hub designed to facilitate comprehensive and streamlined access to health care, funding, and other programs across the GTA that will help children get the best start at life.

Contact us

Phone: 416-813-7654 ext. 204890

Fax: 416-813-8418

Email: ds.clinic@sickkids.ca

Clinic/registration location

The Down Syndrome Clinic is in Clinic 9 on the Main floor of the hospital in the Burton Wing. Please register at the reception area at Clinic 9.

When visiting SickKids an identification (ID) band will be placed on your child and must be worn on their arm or ankle at all times. To ensure your child is receiving the right care during their stay, the care team will use the ID band to check their name, date of birth and medical record number. If your child is sleeping, we’ll make sure to scan the ID band quickly and quietly so that we don’t disturb your child.  

The ID band is made of soft, latex-free material. There are two colours of ID bands: a black ID band indicates that your child has an allergy and a white ID band indicates there is no allergy. The allergy is not printed on the ID band, the care team will review the allergy in our electronic health record.

If your child’s ID band has fallen off or the information is incorrect, be sure to tell your care team. If they are not wearing an ID band or if they have the wrong one, it can lead to errors or delays that can result in the wrong care for your child.

Staff will always look at or scan the ID band before providing care to your child. This may involve

  • Asking parents or patients for two patient identifiers, such as the patient's full name and date of birth;
  • Scanning a barcode on the ID band to confirm the patient’s identity; or
  • Looking at the information on the ID band.

If you or your child are sick before your appointment

Call the clinic if you or your child have had a cold, cough, diarrhea, fever or rash within two days of your appointment, or have been sick with or exposed to chicken pox in the last three weeks. Your appointment may need to be rescheduled. 

Tell the clerk, nurse or doctor if your child has been in a hospital outside of Canada within the last 12 months. 

If you cannot come to your child’s appointment, it is important that you call the clinic as soon as possible to cancel and reschedule.

Be on time

Please check in 15 minutes prior to your appointment time, to allow for blood work prior to your appointment if needed.

If you are late, you may have to wait for other patients to be seen first. Allow lots of time to get to the hospital. It can take some time to get used to finding your way around and it is important to be on time for your child’s appointment. Staff will try to see your child as close to your appointment time as possible. Please understand that some patients being seen ahead of you may need more time than expected, and this can cause delay for others.

Bring the following

  • You must show valid health-care coverage at every visit. If you do not, you will be required to pay a fee for the visit, unless coverage or insurance can be verified.

Proof of health-care coverage must be valid at the time of visit (not expired).

    • If you live in Ontario, show your child’s valid Ontario Health Insurance Plan (OHIP) card.
    • If you live in another province, show your child’s provincial health-care card.
    • If you are a refugee claimant, show your child’s Interim Federal Health Program (IFHP) certificate.
    • If you have private health insurance, show the appropriate information or documentation.
    • If you are receiving support from a Community Health Centre (CHC), show a letter from the CHC.
  • Your appointment card or letter
  • Toys, books, nut-free snacks, diapers and formula to keep your child comfortable and occupied in case there is a wait
  • Any medical information, such as referral letters, test results, information about current therapies, X-rays, MRIs, ultrasounds or CT scans
  • All medications your child is currently taking (in original packaging), including alternative and complementary treatments
  • If you are separated or divorced, bring along any legal papers that show who has custody of your child and who can make decisions about your child’s care. For more information, see protocol for separated families: roles, expectations and documentation required with respect to custody and access.
  • Any completed forms that were provided to you prior to your appointment: intake forms, ABAS forms, Consent for Disclosure of Personal Health Information.
  • Therapy reports (e.g. OT, PT, Speech)

Try not to bring other children to the appointment

If other children must come, please consider taking them to the PlayPark during your visit. It is located on the Main Floor of the Atrium, next to the parking elevators. All children over 2 ½ years of age are welcome. Trained staff and volunteers will watch your children carefully. You do not need to book in advance to use the PlayPark. The PlayPark number is 416-813-8884.

Latex allergy

Call the clinic before coming to the hospital if you, your child or anyone coming with them has a known or suspected allergy to latex.


All visitor entrances on the Main Floor are wheelchair accessible. SickKids has several wheelchair-accessible washrooms on the Main Floor and gender-neutral washrooms throughout the hospital. Both male and female washrooms in the Atrium have large change tables where children and teens can have diapers changed. There is another private wheelchair-accessible washroom with a large change table on the Service Floor of the Black Wing in Room S213, across the hall from Rehabilitation Services. Wheelchairs are available near the Atrium and University Avenue entrances.

Assistance dogs for children, parents or caregivers with disabilities are allowed at SickKids. Please make sure they are clean and have up-to-date immunizations.

Interpreter Services

If you require our free Interpreter Services, please call the clinic before your appointment so we can arrange for a interpreter. Please give us at least 24 to 48 hours' notice to make it easier for us to find an interpreter for you.

What to expect during your visit

At your first appointment, you will meet the Down syndrome team (a paediatrician, a developmental paediatrician, a nurse, and a social worker). Also present at the appointment will be a representative from Surrey Place Centre’s Infancy and Early Childhood Program. Your appointments will be between 60 and 90 minutes. During the first appointment, we will take a health history of your child, provide information on Down syndrome and explain the specific health and developmental needs of children with Down syndrome.

We will see you and your child every 6 to 12 months, and will ask you to complete developmental assessments on your child as they grow. We will see your child in the clinic until they start school (typically around 4 years old).

We expect our patients to maintain close contact with their regular family doctor/paediatrician, as the Down Syndrome Clinic does not provide primary care.

Information and referrals

If you are a health-care provider and wish to make a referral to our clinic, please review our referral process.

For family members of children with Down syndrome, you can make a referral to early intervention, speech and language, respite, and audiology (before 12 months of age) services in our directory. These do NOT require a doctors referral.

You can find links to our resource directory in the resources below. These include early intervention services, family support networks, child care and schools, programs, and medical information on Down syndrome.