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SickKids
Headshot of Julie Rose

Julie Rose

Title: Project Manager, Patient & Family Experience
Pronouns: She/Her
Phone: 416-813-7654 ext. 414274
Email: julie.rose@sickkids.ca
Other Positions: Lived Experience Advisor

Research Positions

Parent Partner in Research

Biography

Julie Rose is a caregiver with lived experience who has been a dedicated member of the SickKids Family Advisory Network for the past nine years. She has served as the Co-Chair of the Family-Centred Care Advisory Council (FCCAC) for four years and contributed her expertise as a member of the Board Quality and Safety Committee (BQSC) for the same period. Rose has been part of numerous committes and PFACs at SickKids, while collaborating closely with patients, families, and staff to advance family-centred care and strengthen engagement across the hospital. She is recognized for bringing the caregiver perspective into strategic planning, program development, and quality improvement initiatives.

Recently, Rose transitioned into the role of Project Manager within the Office of Patient and Family Experience at SickKids, where she continues to champion partnership and collaboration between families and staff. Her work reflects a deep commitment to ensuring that the voices of patients and caregivers are embedded in decision-making at every level.

Research

As a patient parent at SickKids, Rose's research contributions span complex care, caregiver wellness, and family engagement in health system improvement. Her work ensures that caregiver and patient perspectives are embedded in research questions, methodologies, and outcomes, helping to bridge the gap between academic evidence and the realities of care. Rose continues to help strengthen the caregiver voice, develop tools and training for staff, and create sustainable partnerships between families and the health system.

  1. Identifying and Addressing Immunization Gaps Amongst Children with Medical Complexity: A Mixed Methods Study
  2. Advancing Nurse Practitioner Practice in the Care of Children with Medical Complexity
  3. CHILD-BRIGHT ADAPT: Assessing and Developing an Adapted navigator role to support Parents during neonatal Transition
  4. Caring for the Caregiver (C4C): An integrated stepped care model for caregivers of children with medical complexity
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