Statement regarding closure of Motherisk Helplines
Updated May 16, 2019
TORONTO - Today, the Motherisk Helplines are closing. The decision follows years of declining grant funding leading to staff reductions, as well as unsuccessful efforts to secure an alternative host for the program.
The Motherisk Program was created at The Hospital for Sick Children (SickKids) in 1985. The program’s services addressed the lack of availability of up-to-date information about the risk and safety of medications and other exposures during pregnancy and breastfeeding. As such, the Motherisk Helplines were popular with family physicians and obstetricians, as well as women during pregnancy and while breastfeeding. The number of calls to the Helplines has remained high, and closing the service was not an easy decision.
“Without sustainable, secure funding and absent an alternative, reputable organization to host and fund the Helplines, SickKids has made the difficult decision to close the program,” says Dr. David Naylor, SickKids Interim President and CEO. “SickKids also believes the program needs to be reinvented, set up with a clear national mandate, and tied more closely to the obstetrics and primary care communities. Physicians and scientists on our staff would be very happy to work with any new host organizations.”
The decision was based on three factors. First, the initiation of this program reflected the research interests and expertise of academic physicians on staff at the time. The Motherisk Helplines were funded through various external grants and donations. It was neither Ministry mandated, nor provincially funded, and thus its closure is unrelated to provincial funding.
Over the last three years, those grants and donations have been reduced to zero. The Hospital does not believe it is appropriate to continue cross-subsidizing this service from an operating budget focused on complex care for some of the sickest children in Ontario and from across Canada.
Second, the difficulty in seeking private support for the program reflected adverse publicity arising from concerns about the quality of work carried out by a hair analysis laboratory that also carried the Motherisk name. Consideration was given to re-naming and re-branding the Helplines. However, questions quickly arose as to whether this service was best hosted at a paediatric hospital.
A more logical alternative would be for the Helplines to be hosted at a hospital with substantial activity in caring for women during pregnancy and in the postnatal period. Ideally, such a service would be tied to national organizations of specialists in disciplines such as family medicine and obstetrics and gynaecology. We have explored some of these possibilities, and have emphasized that SickKids physicians and scientists would be pleased to continue to provide input on clinical pharmacology and toxicology in any transition. The challenge is that a major organizational and fundraising effort would be required, and the lack of an identifiable and consistent source of external funding remains a hurdle.
Among the considerations here is that the complexity of issues in this realm is steadily growing. Physicians are prescribing powerful new drugs based in modern molecular biology, and individual variation in drug metabolism has become clearer as the discipline of pharmacogenomics has grown. To remain relevant and cutting-edge, this program would need financial support above its previous peak levels.
Third and finally, individuals with inquiries about medications and other exposures during pregnancy and while breastfeeding can contact their health-care providers.
SickKids is still accepting referrals to the Motherisk Clinic from health-care providers. The Motherisk Clinic is a specialized referral-only service that assesses the safety of medications and/or substances consumed by pregnant or nursing women and the potential effects on their babies. Health-care providers can continue to send referrals via EpicCareLink.